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2024

Annual Report

#WeAreAccessLiving

From Our President and CEO

Karen Tamely with her family, Dr. Carrie Sandahl of UIC, and Dr. Sandahl’s daughter at Access Living’s June 2024 gala

Dear Access Living friends and allies,

I am incredibly proud to share the progress we’ve made this year in advancing the rights and opportunities of people with disabilities. Our work continues to be fueled by the support of our community: the donors, community partners, board members, staff, consumers, and allies who believe in our mission. 

Thanks to your generosity, Access Living has been able to make a profound impact on the lives of people with disabilities. This past year we have: 

  • Transitioned people with disabilities from institutions into their own homes in communities of their choice; 
  • Taught high school students with disabilities how to become confident self-advocates, empowering them to attend college, pursue meaningful employment, and live independently; 
  • Connected individuals with disabilities to the digital world for the first time, opening doors to housing and employment opportunities, as well as providing new ways to engage with the world around them. 

In addition to these programs, we have continued to advance greater accessibility across transportation systems, schools, parks, government offices, businesses, sports arenas, and housing.  

As shown in the impact video below, we are addressing systemic barriers, such as subminimum wage employment programs and restrictive benefits policies, that prevent many disabled people from building wealth, and perpetuate cycles of poverty.

The relationship between poverty and disability is profound. Poverty not only contributes to the prevalence of disability; it also perpetuates it. In response Access Living has prioritized direct community engagement, offering peer-based financial counseling on critical topics such as credit repair and savings strategies in order to empower individuals to achieve lasting financial stability

The disability community is one that anyone can join at any time, and Access Living is committed to creating an accessible and inclusive world not just for those of us living with disabilities today, but for all those that join us in the future.  

With your ongoing support, we will continue to build a world where everyone has the choice to live with dignity, independence, and financial security. Thank you for being a part of making this important work possible. Together we are creating lasting change. 

Warmly,

Karen Tamley

Karen Tamley's signature

President and CEO
Access Living


#WeAreAccessLiving

As of November 2024, HB 793, the Dignity in Pay Act, was PASSED by the Illinois State Legislature and sent to Governor Pritzker’s desk for his signature. Access Living is proud to have collectively passed this legislation alongside a coalition of Illinois workers, employers, state agencies, and legislators.

Our Consumers

By Primary Disability

By Race

By Age

Our Work: By The Numbers

7,206

Individuals received information and referral services

1,027

Participants in 519 community organizing meetings, to advance disability policy.

3,500

People reached through our disability inclusion consulting and training to the corporate, non-profit and philanthropic sectors

1,453

Disabled Chicagoans received independent living supports through our partnership with the Mayor’s Office for People with Disabilities

1,369

external collaboration meetings, expanding the reach and impact of organizing efforts

1,026

Consumers with disabilities were assisted with housing needs

373

People learned about the fair housing rights of people with disabilities

278

Participants reached through book readings, art making for mental health, storytelling workshops, and more

194

Households received our housing counseling services to improve living conditions

161

High school sutents with disabilities prepared to transition into higher education or the workforce through our youth leadership trainings in 17 schools

137

137 meetings with elected officials to advance disability rights and policy change

98

Disabled consumers received assistive tech devices and the necessary training to use them to live more independently

89

Disabled consumers graduated from an 11-week financial literacy training, and shared that they have improved their financial positions as a result

83

Disabled consumers transitioned out of nursing facilities/Individuals were recruited and trained as personal assistants for people with disabilities

81

Disabled consumers were provided with technology (such as computers/tablets) as well as technology training as well as a computer/tablet in order to increase their independence through digital literacy

64

New or ongoing legal cases related to the Fair Housing Amendments Act and the Americans with Disabilities Act

50

Tests of housing units for compliance with the Fair Housing Act were conducted

25

Disability discrimination cases resolved

22

Cultural events and Cross-disability support group sessions held for community-building

9

Fair housing trainings conducted


Building Momentum: Advocacy in Action

Access Living has led the fight for affordable, accessible housing in Chicago since we opened our doors in 1980. This fight continues to this day through our direct services, community organizing group, advocacy efforts, and an ongoing lawsuit against the City of Chicago, Access Living v. Chicago.

 

  • Building Our Power Together (BOPT): We graduated our third annual class of new community organizers who went through six weeks of training with our organizing staff. 
  • Disability Rights Action Coalition for Housing (DRACH): Advocates for affordable, accessible, and integrated housing options for people with disabilities. 
    • Focused on addressing homelessness and promoting equitable housing policies; DRACH is the plaintiff for our accessible homeless shelter lawsuit 
    • Actively supported campaigns like Bring Chicago Home and the Accountable Housing Anti-Discrimination Waitlist Act (AHAD) ordinance.  
  • Cambiando Vidas (Latinx Organizing Group): Advocates for the rights of immigrants and refugees with disabilities. 
    • Celebrated its 15th anniversary this year 
    • Worked to preserve Illinois’ healthcare program for undocumented immigrants. 
    • Spearheaded accessibility improvements at the Mexican consulate to better serve the Latinx disability community. 
    • Developing food justice campaign—reach out to get involved! 
  • Economic Justice Organizing Group: Our newest group has had three meetings so far and is developing campaigns to address economic disparities for disabled people of color. 
  • Task Force on Attendant Services (TFAS): Focuses on equitable access to healthcare services for people with disabilities. 
    • Led the Emergency Services Campaign to get the City to commit to a pilot program to transport mobility devices to the hospital, when people are taken to the hospital by ambulance. 
    • Advocates for accessibility in Chicago’s emergency room and is working with a Northwestern researcher to develop their campaign 
  • Economic Justice Organizing Group: Our newest group has had three meetings so far and is developing campaigns to address economic disparities for disabled people of color. 
  • Power to the People (PTP): Hosts all organizing groups for monthly coalition meetings.  

 

 

  • Affordable Rental Housing Program Lawsuit: A federal lawsuit has been filed against the City of Chicago to require it to make its Affordable Rental Housing Program accessible to people with disabilities, as mandated by several federal civil rights laws. This case is based on a similar lawsuit in Los Angeles that led to the rehabilitation and construction of thousands of accessible housing units.
  • Emergency Shelter Accessibility Lawsuit: A federal lawsuit has been filed against the City of Chicago to compel the city to make its emergency shelter system accessible to individuals who are homeless and have disabilities.
  • Haymarket Treatment Center Lawsuit: A federal lawsuit has been brought against the Village of Itasca after it denied Haymarket’s application to open a treatment center for individuals with substance use disorders. The lawsuit alleges that this denial constitutes discrimination against people in recovery, which violates the federal Fair Housing Act, the Americans with Disabilities Act (ADA), and Section 504 of the Rehabilitation Act. The lawsuit seeks to compel Itasca to approve the treatment center.
  • Chicago White Sox Lawsuit Settlement: A lawsuit against the Chicago White Sox was amicably settled. As part of the settlement, the White Sox worked with Access Living to review and update their ticketing processes to ensure a fully accessible and inclusive game-day experience for all fans, including those with disabilities. Access Living extends its gratitude to the law firm Much Shelist, P.C. for their support in resolving this case.
    • Governor Pritzker signed a new law establishing key rules for accessible parking in condominium buildings: 
    • Reasonable Accommodations: Condominium associations in Illinois are now required to make reasonable efforts to accommodate unit owners with disabilities who need accessible parking. 
    • Accessible Parking Policy: Condominium associations must create and adopt a reasonable policy for providing accessible parking accommodations to unit owners with disabilities. 
    • Accessible Parking in New Buildings: In new condominium buildings, accessible parking spaces must remain part of the common areas. While these spaces can be leased or licensed to unit owners without disabilities, they cannot be sold. Additionally, if a unit owner without a disability is using an accessible parking space and the condominium association approves a request from a unit owner with a disability, the space must immediately be relinquished. 
    • As of November 2024, HB 793, the Dignity in Pay Act, was passed by the Illinois State Legislature and sent to Governor Pritzker’s desk for his signature. Access Living is proud to have collectively passed this legislation alongside a coalition of Illinois workers, employers, state agencies, and legislators. 
    • Access Living convened state and community provider stakeholders to hear from a national expert on mobile mental health crisis response, and continue to work to ensure that the Community Emergency Services and Supports Act (CESSA) rolls out in a way that is consistent with our grassroots’ vision. 
    • Our Education Policy Analyst helped lead the way to get the Chicago Public Schools to change the name of the Office of Diverse Learners Supports and Services. It is now the Office for Students with Disabilities. We also passed HB 340, which clarifies the requirement that families of students with disabilities must be sent a copy of the draft IEP no less than 3 days before the IEP meeting. And, we also secured clarification that Illinois vocational rehabilitation will pay for postsecondary education for students with intellectual/developmental disabilities. 
    • To date, Access Living and our partner have managed to stall the proposed Illinois assisted suicide bill, which we oppose because of the risk to disabled lives. The proponents had originally hoped to pass it this year. 
    • Developed in partnership between Access Living and Better Streets Chicago, Plow the Sidewalks seeks to make sidewalk snow and ice clearance a citywide municipal service. We worked with the City to create a pilot program. We are currently fighting to ensure the funding for that pilot program is included in the City of Chicago budget. 

    We are also in the process of developing some new legislative efforts, especially in the areas of decarceration, economic justice, and more. Reach out to the Advocacy Department to learn more. 

     

     


Auden, a 3Arts/Bodies of Work resident artist, shows a notebook filled with overlapping images and text, including handwriting, photos, cutouts of jellyfish, and comic strips. A quote along one side reads, “Disability is not a brave struggle, or courage in the face of adversity. Disability is an art, an ingenious way to live.”

Access Living intern, Bee Randolph, prepares for Access Living’s grand re-opening. They sit at a table surrounded by many colors of yarn and fabric preparing to facilitate a group activity to produce a large yarn bowl.

3Arts

Art Institute of Chicago

Bodies of Work: Network of Disability Art and Culture

Center for Mad Culture

Chicago Disability Cultural Center, University Of Illinois at Chicago

Chicagoland Disabled People of Color Coalition

City of Chicago Department of Cultural Affairs and Special Events (DCASE)

Communities United

Creative Chicago Reuse Exchange (CCRx)

Curb Appeal Gallery

Department of Art Therapy and Counseling, The School of the Art Institute of Chicago/DCAL

Department of Disability and Human Development, University of Illinois at Chicago

Inclusive Dance Workshop Series

Kensington Nursing and Rehabilitation Center

Little Italy Library

MOMENTA Dance Company

Oak Park Oasis

Press Here Gallery

Program on Disability Art, Culture, and Humanities, Department of Disability and Human Development, University of Illinois at Chicago

Tellin’ Tales Theatre

The Museum of Contemporary Art

Women & Children First Bookstore

/spAmelia-Marie Altstadt
Bri Beck
Maggie Bridger
Matt Bodett
Bee Bolino
Sydney Erlikh
Arianne Garner
Auden Granger
Leah Gipson
Grace Gimpel
Judith Harding
Stephanie Heit
Mary Hobein
Terri Lynne Hudson
Ray Jorgenson
Mimi Khuc
Grace Maypril Krukowski-Minor
Petra Kuppers
Kal Lee
Kris Lenzo
Tekki Lomnicki
Bri Noonan
Bee Randolph
Genevieve Ramos
Alexis Riley
Rachel Singer
Gabi Tashuda
Miriam Wright
Sandie Yi
Joy Young

Our 2024 Board of Directors

Officers

Denise Avant
National Federation of the Blind of Illinois
Vice Chair/Program Committee Chair

Kevin Bradley
HUB International
Board Chair

Karin M. Norington-Reaves
Secretary

 

Chad E. Turner
Bank of America
Treasurer/Finance Committee Chair

Members

Drew Beres
Croke Fairchild Duarte & Beres LLC
Resource Development & Communications Committee Vice Chair

Kristen Carey
Northern Trust
Resource Development & Communications Committee Chair

Sangeeta Patel Driver, MD MPH
Shirley Ryan AbilityLab
Program Committee Vice Chair

William Haffner

 

Hon. Neil Hartigan

Anthony Hinton

Leah Jaron
Terumo Blood and Cell Technologies

Dr. Zachary Kordik
Modern Mental Health

Ben Lumicao
Allstate
Nominating & Board Development Committee Chair

Chaitanya Manchanda
Discover

 

 

 

Rosanna A. Márquez
AARP
Nominating & Board Development Committee Vice Chair

Nancy Prussian-Weber
General Parking Corporation

Jaya Sharma
Deloitte

Carlos Terrazas
McDonald’s Corporation

Molly Walsh
J.P. Morgan

Peter Yi
Finance and Human Resources Vice Chair

 

The 2024 Access Living Gala Supporters and Sponsors

Visionary Sponsors

Drew L. Beres and Mia Buntic

Carol and Peter Goldman

Carylon, Julius and Marcie Hemmelstein Foundation

HUB International

LCM Architects

Ken and Lucy Lehman Family (Kellcie Fund)

Ben Lumicao

McDonald’s Corporation

RUSH University Medical Center

John Schmidt & Janet Gilboy

Walsh-McKillip Family

Group photo on Access Living's rooftop deck
A group of Access Living staff members pose together after a recent donor event on Access Living’s rooftop terrace.

Our Financials

For security purposes, we post our financials as a PDF. 

Download our statements of financial position: June 30, 2024 and 2023